S.O.S

 

We are screaming for your help. Please hear us.  On March 23, 2008, our son, Evan, was diagnosed with Duchenne Muscular Dystrophy, which is 100% fatal, usually by late teens or early 20's. 

 

He is 4 years old.  If you saw him, you would hardly know anything is wrong.  He is very active and always talks about what he will do when he grows up.  Yet, every time one of his muscle cells dies from playing too hard, or even walking too far, it does not regenerate.  If allowed to take its course, Duchenne will rob Evan of his ability to walk by 12. By his mid-teens he will barely be able to breathe for himself.  By his late teens or early twenties, Duchenne will rob Evan's beautiful little heart, of the ability to beat.  We know this as we watch him play with his big brother, and as he asks us excitedly about the future. 

 

No parent should know when or how their child will die. We will not stare into his blue eyes and accept this as his future. From this point forward, every second of every day will be committed to stopping this monster from taking his body.

 

Scientists are close to finding therapies that could dramatically slow down or even completely stop the progression of Duchenne, and give Evan a fairly normal lifespan, just as insulin has done for Type 1 Diabetes patients.   Human trails of some therapies have already met with success. The cure is within our grasp. However, you must understand that Duchenne research is extremely underfunded and time is not on our side.

 

 

 

Funding from your donations will speed research, and get help to our Evan and thousands like him, before it is too late.  Please donate to Cure Duchenne by clicking on the Donate Now button.  They are sending donations directly to researchers. Please help us raise money so that our son and the 20,000 little boys born each year with this devastating condition will never realize the horror that awaits them.

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Donating through this site is simple, fast and totally secure. It is also tax deductable.  You will recieve a letter from Cure Duchenne to use as your tax document. PLEASE forward it to as many people as you feel might want to help our son. 

Also, please go to CureDuchenne’s website(www.cureduchenne.org), and read all you can about DMD and the progress that is being made so that you can tell others.  We are counting on you.

Please donate. There is no other way we can fight this monster. EVERY dollar counts and is sincerely appreciated. 

Sincerely,

Bill and Kimberly Procko 

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