Welcome to our first blog. We are traveling from our home in North Florida to Los Angeles. Our goal is to meet with the president and founders of the Cure Duchenne Muscular Dystrophy foundation (Debra and Paul Miller) and their son, Hawkin, who also has DMD.

After our son, Evan, was diagnosed with Duchenne Muscular Dystrophy we did an incredible amount of research. We learned that research for Duchenne is severly underfunded. The Muscular Dystrophy Association (MDA) can only give 5% of every dollar to research to find a cure for Duchenne. This is because they fund many muscular diseases as well as surgeries, wheelchairs, summer camps….etc.

We are truly in a race against time. Our children get weaker everyday. Duchenne is the most common and most severe gentic disorder affecting young boys. Because they progressively lose muscle cells, it steels their ability to run and jump at the earliest ages, their ability to walk before they become teenagers and their ability to breathe by their mid to late teens.

Unlike the MDA, we found Cure Duchenne to be one of only a few foundations that are able to send all donations directly to the reseachers hands. Their goal is simple. To save their son. You can log on to their website to see what they are funding.

Therefore, we are driving across the country in an effort to raise awareness and funds for research in all the towns we visit. Please help us save our son by helping to spread the word and donating to our fundraising page.