Evan- Pre- K Pirate Anne Heche & Kim

I hear a little boy's low raspy voice ..., "Say your prayers boy" followed by chaotic sounds of intense proportion. I look up to see Evan playing with his pirate ship. I stop to watch him. His face is twisted in a scowl and his blue eyes are fierce. His imagination is played out in every detail. He is beautiful. And, while I am enjoying the moment, I am burdened by sickening knowledge. If his disorder is allowed to progress....,he will lose the ability to command his little arms and fingers to play out his imagination. He will lose the ability to walk to his toys and sit down on his own, to play with them. He is my son. I know his dreams and fears. I hug him and his little arms squeeze my body tightly. They are strong now. How much longer he will be able to give me that hug, I do not know. I only know, it too will be taken away.

The Celebrity Auction event was huge and brought in $150,000 for Duchenne. That is a wonderful ,amazing thing during these economic times. We met Anne Heche and Hollywood producers Chris Moore and Jenno Topping. They were very approachable and listen to us talk about our experience with Duchenne and how hopeful we are with the current research and its desperate need for funding.

There are potential therapies in current research trials, which may help if released soon enough. If you can only give $10 dollars, then that is 10 votes my son will live. Please do it now. Research will slow or speed up depending on the dollars they receive today.