| Peace In Any Language |
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Research with gene therapy is incredibly promising. The science is in place to not only slow down this monster, but actually cure it. Funding remains the biggest question and road block to realizing those dreams for Evan. Bill and I have understood this and have been literally pounding the pavement asking for donations beginning when Evan was first diagnosed two years ago. Donations have since drastically slowed due to our economy. This is frightening to us. We wonder if what is happening on a small scale to us could be happening on a larger scale to Duchenne Research. Bill and I also feel frustrated about not being able to provide Evan with things he needs example...an elevator of some kind to get him up and down the stairs that lead to our home. Taking some type of positive action is the only way to change any situation (Extraordinary Measures - Recent Harrison Ford movie completely describes our situation). People have responded kindly to our pleas and they are forever in our hearts. But so much more is needed. The stress of living in uncertain times, the threat of terrorism and war directly affect our economy. Perhaps peace is what we need. Peace of mind and body. Inner peace as well as peace among us. Perhaps then people could feel more free to focus on helping others. Bill and I built a web-based company called Peace In Any Language. It is a world peace t-shirt company that focuses on printing the word "peace" on t-shirts in any of over 300 languages. Bill is credited with this idea. I racked my brain and kept coming to him with ideas. I guess it was after my "let's sell Spanish moss!" idea he felt he had to stop me and was inspired to come up with the peace t-shirt idea. It is our desire to direct a portion of all proceeds to Cure Duchenne. Because our company is only a few months old, the portion currently donated to Cure Duchenne is 10% of profits. The rest is goes back to pay for start up costs. Hopefully it will become successful and allow us to pay for Evan's needs while significantly increasing the percentage we are able to donate to Cure Duchenne . Funding research is Evan's only hope. The science is in place to find a cure for him, it is only delayed by funding. It is really just that simple. "Peace" means many things.... free from turmoil, anxiety and war... free from Duchenne.
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