1-21-11 & 1-22-11
This fundraiser will take place at the annual Life Vantage "Elite Academy" conference, at the San Diego Convention Center. Kim Procko and Debra Miller will take the stage for our boys, to rally close to 2000 conventioners.  Cure Duchenne T-Shirts will be sold, with proceeds to our cause. "Protandim", has historically been a part of many DMD children's supplement regimens, due to it's proven ability to reduce fibrosis, inflamation, and greatly reduce the bombardment of free radicals.  We started Evan on Protandim 4 months before his diagnosis (in 2007).  Because of his symptoms, we were fairly convinced of DMD, but chose not to wait for the long process of diagnosis to at least start him on Protandim.   



The 2010 Climb to Cure Duchenne, (50 States- "Pick Your Peak")

When : Friday, June 19th and Saturday, June 20th, 2010

Where : Represent your state and choose your own location.


Due the the overwhelming success of last year's Mt. Rainier climb, we are now organizing and recruiting "climb" teams in each of the 50 states!!  So pick a mountain, hill, or even a tall building (if your state is vertically challenged), and become part of next summer's national event!

Parents or anyone with a passion for our are all invited to take part. Between now and June 20th, each team will need to raise $5,000 dollars for Cure Duchenne.  A relatively easy amount for a team to collectively raise in 3 months!  Our national goal will be $250,000.00 (or more if more than 50 teams sign up)

FLORIDA'S Team: I have obtained consent to climb one of the tallest skyscrapers in Florida, the Wauchovia Financial Center in Miami, on June 20th.  If you live in florida, and would like to join our team, please let us know ASAP.  The more climbers we have, the less money each needs to raise.  Ex)  20 climbers need only to raise $250 each by June. 

 Interested in making history? 

log on to  

Click on the mountain.











Celebrity Auction, Hollywood, CA

Saturday, May 9, 2009

6:30 - Midnight

"Second Annual 2009 Dealing For Duchenne Celebrity Poker and Auction"

Peterson Automotive Museum

Hollywood, California

We will be attending this event.

To view the list of auction items, go to home page and click on
"CELEBRITY AUCTION ITEMS", located on right side of screen.

****On or about the 3rd week of July****
The community of High Springs, FL/Lion's Club will benefit Evan and Cure Duchenne, with a fundraising event.
Details will be posted as this date nears.


Coming August 29, 2009: "2009 Climb to Cure Duchenne"


Our Mt. Rainier climbing team has been assembled!!!!!! Many have already begun fundraising and training for the mountain. Please help us succeed. Go to the home page and click on "donate". Please sponsor me!! It is $1.00 per foot of this mountain's 14,410' elevation. Become part of our team. When we're done, and you see us all on Oprah, (We're working on it, ya never know) you will be able to say, "Hey...I helped get them there!!!!! Donations as always, go to research. Please help us chip away at this monumental goal.

Three of the team's members are DMD Moms who have never climbed before. Debra and Paul Miller, the founders of Cure Duchenne, will be climbing. Members of the band, "Catch Penney", (who's song about DMD can be heard in Evan's You Tube video), will be climbing. A member of a TV and Film production company who will be filming a reality pilot/documentary, will be climbing. A University of Florida molecular genetics and pediatric cardiologist/Duchenne researcher will be climbing. The former CEO of a French biotech company who's involved in Duchenne research will be climbing. The DMD Dad/founder of www.Ryans will be climbing.....the high energy list goes on.

This will undoubtedly be the most motivated group that has ever climbed Mt. Rainier.

See "Newspapaer Articles about Evan and Fundraising" on our home page for more info.